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Barry was born on October 5, 1988. Barry is in 7th grade He enjoys Nintendo, Pokemon, playing trombone,he also loves animals, swimming and, most of all, amusement parks. He is a roller coaster junkie and loves to design the wildest coaster he can on Roller Coaster Tycoon!
Devon was born on April 26, 1990. Devon is in 6th grade. Devon also loves Nintendo, Pokemon, animals, swimming, drawing and amusement parks. Although not a roller coaster fan like Barry, he likes to design them on Roller Coaster Tycoon. Devon recently gave up playing the trumpet.
Asperger's Syndrome is a type of Autism - also called higher functioning autism. Living with an AS child is very trying and difficult. Living with three - well let's just say that without a strong faith in God and a good sense of humor we would all be in the looney bin!! We find ourselves avoiding family get-togethers or visits whenever possible because of their disorder. When viewed by people not "in the know" in looks very much like bad parenting and we don't like to be viewed as "bad parents".
Both children have a hard time making friends, even though they want to, so they end up withdrawing. Listening to the children talk is difficult too because Barry's speech has a speech impediment and is difficult to understand and both boys speech border on pedantic - being a walking dictionary. If you ask them to do something - such as take a glass off the table and put it in the sink they won't do it because the item in question is not glass - it is a plastic tumbler. Everything with them HAS to be precise or they will not understand what you are saying. They also do not understand "double talk" or innuendoes. I have to be careful that I don't say anything in jest that might be construed as for real - like once I yelled at the dog "I'll kill you" for tearing up a book and Barry thought I was really going to do it even though I have never harmed an animal in my life.
Devon has his own set of problems. Devon also has Tourette's Syndrome. So in addition to the AS difficulties, Devon also stutters, stammers and has numerous body and vocal tics. Devon is now in a classroom that has a zero tolerance on teasing and they have helped the other kids appreciate Devon and his gifts.
Both children suffer from Sensory Integration Dysfunction. Barry has problems with excessive sound or visual stimuli. Devon has problems with touching and certain things touching his skin.
In addtion to Asperger's, all 3 children deal with Attention Deficit Disorder (including my daughter Anastasia). The boys also deal with Sensory Integration Disorder, Obsessive Compulsive Disorder, PDD-NOS,and Hyperactivity.
Please check out the links on this page for Asperger's,ADHD, Tourette's Syndrome, PDD-NOS, Obsessive Compulsive Disorder, Sensory Integration Disorder. As I find out more information I will post it here.
MUST READ BOOKS
Asperger's Syndrome - A Guide for Parents & Professionals
By Tony Attwood
Asperger's Syndrome - A Practical Guide for Teachers
By Val Cumine, Julia Leach & Gill Stevenson
The Out-of-Sync Child-Recognizing & Coping with Sensory Integration Dysfunction
By Carol Stock Kranowitz, MA